Tag: therapy

  • Things That Aren’t Cool

    Things That Aren’t Cool

    Photo: Online search

    So, someone I blocked came up with a new FB profile at some point. It’s not a common name here, so not that tough to stand out on a FB page. This person is (or was) rarely on FB. I found others with the same name but not the same photo, so blocked them as well (easy to use a phony photo). Yeah, I’m talking to you… and anyone else who is struggling with a staggering lack of integrity and/or excessive pulling of puppet strings.

    Cyberstalking is a crime in the US. Even tracking my social media is a crime; we’re not FB friends. Blogs don’t fit into that category, so snoop to your heart’s content here. https://fitzpatrick.house.gov/protecting-americans-from-cyberstalking

    When cyberstalking is done internationally, that is a federal crime.
    https://www.stalkingriskprofile.com/what-is-stalking/international-legislation

    There’s even a specific FBI page to report cyberstalking. That would involve giving out a lot of information about too many people, and I don’t want to do that. https://www.ic3.gov I still want the best for so many people, but I won’t be bullied. I doubt any of us really care about being up in each other’s business.

    Are you being asked to keep secrets? Like it’s some kind of special bond? Others are told the same things. After removing myself from the ‘situation’, I doubt just about everything I was told- and that was really hard. I’d known about this person since the late 90s… I believed the fairy tale. I ended up in the dungeon.

    Are you told something will happen at a specific time, and hours later it might happen? I started keeping a journal of what was supposed to happen vs. what did happen. Not a good track record for keeping to plans. I was told repeatedly that there were 10 sessions going on every day. How was there time for all of you? https://www.psychologytoday.com/us/blog/hide-and-seek/201406/the-psychology-of-lateness

    Has someone else warned you about things, but you didn’t believe the person trying to alert you? Was that person then vilified by someone who disagreed with the person who tried to warn you, in order to keep you as a patient? How many people have to share the same story to be believed, or at least considered? If all of this is working for you, great. I am truly happy that you had the resources to be conditionally loved. There is no “unconditional” once finances dip, even if the fees were agreed upon. There are a bunch of YouTube comments by people who had the same happen to them, and a book full of failed treatment. You don’t have to believe anyone- and that won’t change what is. Patterns show both good and bad.

    Do you know what it’s like to spend 2+ years being so desperate for something to fill the void of an absent therapist that you turned to YouTube just for SOME kind of help?

    Are you told that you’re “loved like a daughter/son”? We’re all disposable. That’s pretty much all I learned between June 2022 and October 2025. It’s all for money. Before being accepted as a patient, it was known I was selling my house. I don’t think that’s a coincidence.

    Are you told that ________ will happen, and it never does? One ‘rosey’ book has been ready to be published since a blog post by the author in 2013. Or the recording sessions for the website that never materialized. She told me to sell everything I could to send her $1000 USD for some investment thing for the website. I said no; I was facing 2 biopsies during that time (with financial considerations in a country without universal healthcare), and had already failed 2 other cancer screenings. That was the beginning of even more reduced contact. She’d say that isn’t true that it related to money. I have receipts and a logbook of contact (phone and messages).

    https://www.psychologytoday.com/us/basics/therapy/boundaries-and-red-flags-in-therapy

    Do you think that the person you admire is near ‘perfect’ and always right ? It’s easy to do when you want to get well so badly. NOBODY is always right, and perfection is a myth. Something I really respect is epistemic humility… the knowledge that all of our views are biased and limited based on life experience, point of view, etc. That there is always something to learn. I was told that my view of my experience is wrong- which is nobody’s right to put their singular point of view on me. What someone DOES with the feelings can be defined one way or another to some extent, but feelings just are. To learn from the feelings and other views is incredibly valuable. .https://pmc.ncbi.nlm.nih.gov/articles/PMC12681921/

    Did you truly research the person you care so much about? Or did you wing it hoping they were who you thought they were? I didn’t read up on things I’d heard about, and it was a mistake on my part that I pay for every day I wake up. Now, I need to keep myself safe, which I never thought would be the case. It’s been one of the worst times in my life (and that’s saying something with my trauma history). I truly wanted to get well, and only with one person, because it WAS my last shot. I wanted who I thought could help. I backed up so many things online when criticism was harsh against X- you know that.

    Have I made mistakes? Yup. While I don’t remember writing some things, that were on my page (I was looking for a cover photo), I immediately took them down and apologized via email to the person involved. The information was true about what I’d been told (whether what I was told was true is another matter- and I don’t believe it now), and yet I was wrong to post what was on my page ( I seriously don’t remember). I can only guess that the pain involved got the better of me, and I need to do better in the future. But I can recognize that I needed to fix something and apologize.

    Imagine being told by someone who claims to have a mission of self-esteem building not to have the time to discuss a life-threatening matter when it was discussed the day before that a call would happen to talk about possible ways to make part of a second test possible (to enable the removal of a small mass that is still there because of that missed call, with other changes now also going on). That was after declining an SOS call. It was the 2nd in 3+ years, and I had permission. That call was so important because of the physical limitations from decades of restricting, and facing 8 liters of prep over 2 days when I have had an NG for fluids since the summer of 2022 just to get 2 liters in per day to protect my kidneys. It was devastating to basically be told that if I die, oh well… not important enough. But it was ‘normal’. Most calls never happened, or there would be a month between calls after being begged (literally) to stay another year (for what, I’m not sure), and messages not seen for up to a week- that little blue double check thing, ya know? When my funds ran out, so did contact, even though I was told that I wouldn’t have to pay after paying for nearly 3 years of the estimated 2 years (2 1/2 max) that I’d budgeted for based on initial conversations. On a disability income. I’ve emailed all of this multiple times to X. Didn’t matter.

    Until recently, did you ever hear anything negative about me? I know she talked about me with patients in the house, and back then I was fine with that. We talked on Christmas 2024… was I a horrible creature then? I’m guessing that’s how I’m portrayed now, and would also expect the standard “borderline personality” label when I’ve never been diagnosed with that diagnosis. I’ve heard that about other people who disagreed with X.

    I started in the summer of 2022… in January 2023, my time was cut drastically when new patients were brought in when others of us were still floundering, and we were left hanging while several got well in the next couple of years. I didn’t hear anything from X for a couple of weeks after getting to Snowville Hills in January 2023- didn’t know if something horrible had happened, or what was going on. Finally I got in touch with someone who had been helping me via messaging and WhatsApp calls. There are others from the past 40 years with nearly identical stories. I was never taught about the ‘core’ of the program. I was left in early stage 2, with no info on how to get my head sorted out. That’s when (or during) the time you and someone else showed up, and then later the other one in the house. Me not getting help is not and never will be your fault. Those are the choices that were made without regard to those of us left behind.

    I was told you’re doing well a while back. That’s really great. I hope you go on to have an incredibly productive life and that you can do whatever job you would enjoy. You’re incredibly smart, and will have so many options when you get out on your own.

    I always seem to survive (been tested enough), so I’m no victim. I’ve been on my own for 40 years. I’ve survived a lot, and now have to survive this. My mind is stronger re: boundaries and my right to my views on my experience. The restricting has gone back to pre-‘help’ levels, which has gone on for nearly all of my life, so it’s all I know. My head was never even close to being fixed. My worth was shattered with the ‘non phone call’. Everything could have been salvaged if she just kept her word. Or if she truly was having medical issues, to say so clearly, and let me know that she’d be out of contact for a while to get taken care of- I would have been so very supportive of that. Tidbits of information come across as disingenuous and flimsy.
    Instead, here we are.









  • More Therapy Repair

    More Therapy Repair

    Image: Online search free downloads

    Because of some creepy stuff that showed up on Facebook, I decided to do a FB search of posts related to a specific last name, and found familiar first names who mentioned people I do know of with the last name I searched. I don’t know for sure if they’re the ‘right’ person by first name only, but I don’t know them, so I blocked a few people. Those blocked with that search were NOT associated with the horrible comments for violence. If any of them see stuff here, so be it. It’s viewable to anyone, though with 3 followers in over 5000 views, this is hardly a high profile blog – LOL. And that’s fine. This is my only ‘hotline’ when I’m overwhelmed or upset. It’s one place I can write, and whether anyone else sees it or not is irrelevant. Human beings have repeatedly proven their lack of trustworthiness in varying degrees (that’s in a broad sense, not isolated to one or two people or situations; I have a trauma warehouse in my head). I don’t have family here, and don’t discuss this with the few friends I have, since I’m essentially housebound, and eating disorders/trauma aren’t great conversation topics.

    I also deleted some posts I’d done as a result of being so hurt. The info in those posts was true about what I was told (but was what I was told true???), but it also didn’t need to be posted. I crossed a line about someone crossing another line. I’d completely forgotten about the posts and found them when I was looking for an old cover photo, going back through posts and photos. They came across as very vindictive, and that was not the purpose. I have very few places to ‘vent’.
    Still not OK.

    In the disturbing posts, the poster called for prison time and various ‘ends’ to someone’s life (I immediately reported those to Facebook). While I’m no longer in contact with the person targeted, there is no time or place for such threats. I also don’t think that prison would serve any good purpose. I know about deaths in Portugal from an article and documentary, but don’t know the details, so can’t say what was good/bad/right/wrong. Many other former patients also died or killed themselves, but that was after leaving the clinic. Others relapsed and died years after the clinic closed. The ‘violent’ person had the name of someone that was very similar to another person I’d had brief contact with, and sent a message (same middle name w/added ‘e’, last name off by one letter, first name with the same sound with the first initial, same number of syllables). They said they were getting actual help, and I wished them well, and blocked them because I can’t trust anyone associated with ‘someone’. I’m guessing the interaction was passed on.

    There were times when I truly enjoyed talking with someone, and hoped that I’d get through this relapse and find wellness. There were conversational phone calls at times that were quite nice, but I never learned how to get past my ‘head’. There’s a 40+ year history of other patients who have posted on various platforms about their lack of recovery with the same person I’d hoped would help me. Some of these I read about in a book by an investigative journalist on this person that I should have read before looking for them, and others I’ve seen online myself.

    Were there helpful things over the years? Yes. There were, especially early on. The first six months were good. Evidently some people do get well if they’re deemed worth the time and can pay for consistent and useful help. That’s just as valid as my nightmare experience, with a fee that was agreed upon mutually prior to starting ‘help’.

    I’m disabled and on a fixed income, so funds were/are limited. There is no universal healthcare. Someone knew I was selling my house before accepting me as a patient. In one request for money for a “website” (never happened that I know of in spite of reportedly recording videos all day every day for a year, which also cut down on time to help me from late summer 2023- late 2024), I was told to “sell everything” I could to send her $1000 (I have the screenshot). When I didn’t do that, phone calls slowed to one a month, with no messages being seen for days on end, up to a week, and someone wanted control over food again after more than 2 years of no food input. I’m not sure how it would work not to see messages or call, but control food. Made no sense.

    Those who heard of me when I was talked about to others living with her will know that I wasn’t known as a ‘problem’. (Someone asked permission to discuss me with those in the house, which I have since rescinded in an email, so discussing me at all is against my wishes at this point). For anything they hear about me now, I wonder does it add up? Have I been turned into a villain ? I’d expect to be viewed as someone hostile at this point based on how others were talked about to me when they disagreed, asked questions, and/or pointed out problems. It’s another pattern. I don’t have that reputation. I wonder if those living with someone have been asked to keep secrets, too. I finally said that if it couldn’t be posted in Times Square, I didn’t want to know.

    I didn’t get well. I felt given up on and disposed of, and intended or not, that was my experience. It would have been so much easier to just hear the truth, that things weren’t as either of us thought they were initially, and the deeper engrained mindset wasn’t going to be undone via WhatsApp ( I never even got a video call, for that important eye contact mentioned in the first Skype audio call when I was too afraid to be seen ). Someone told me I’d needed 24 hour care, but “it was always the money” that kept her from bringing me to her- but that wasn’t said until a few weeks ago, which validated that I wasn’t paying ‘enough’ to truly help. Someone finally said something to that effect in an email months after I’d left. And that’s all I ended up feeling like I was good for. Self-worth eradicated.

    I’m losing weight again, so that’s very good. Shrinking seems to be the best way to cope with existing. That’s my therapy outcome. I’m not sure how long my kidneys will work ‘enough’, but none of that means much.

    And I will continue to wish ‘someone’ well. THAT is who I AM.

  • Bleh Week
(I Miss My Sweet Girl)

    Bleh Week (I Miss My Sweet Girl)

    Photo: Mine -22 May 2025 (minutes after I let my sweet girl go in peace)

    This week has been kind of weird, so I’m thankful for a day without triggers. I did have an appointment with a surgeon on Monday, but was able to chill out after that. I’ll have surgery in a month on multiple scalp cysts (again; this is the fourth time having more than one removed at a time). With dyautonomia, this time of year can be a minefield of chaos with temperatures going up. I don’t thermoregulate well, so higher temps usually mean I’m in for the duration (generally May-September). Too warm (over 65 degrees F) means I’m prone to passing out, so staying home is a safety thing. Now I’m arguing with an opinionated thermostat that keeps wanting to have the temp at 65F. I don’t need that chill, or the electric bill that will come with it. I can tolerate 66-67F indoors with residual cool from the air conditioner and no sunlight.

    The first anniversary of my dog’s death was on Friday. She never knew me working, so we never spent a day or night apart, for over 12 years. She was my reason for existing, and only nearby ‘family’. I miss her so much, but she let me know it was time to be allowed to go in peace, and she did. She was in my arms, and knew I was there (though a bit dopey from pre-procedure sedation). She knew I was talking to her, and that’s what mattered. The three dogs I’ve had since living on my own all died in my arms, as hard as it was. I couldn’t let them think I just left them with the vet and didn’t care. It’s painful, but that’s love– being there for the hard stuff, not just when it’s convenient. She was the closest I’ve ever been to a living thing. She knew my every move (and followed me everywhere). The enthusiastic greeting I’d get when I came in the door, whether after an hour or two because of appointments or tests, or five minutes after taking out the trash, was always the same. I was her world and she was mine. I miss that, and know that I’m not physically or financially able to get another dog, especially with my apartment being a nightmare mess that is taking forever to get sorted out. She really deserves her own post, but I’m not sure i want to share much of her yet.

    There were some SNAFUs with my tax payment (sent at the end of March), as well as coverage for my CPAP machine which left me unglued that day. It all got taken care of the next morning, but any unexpected chaos is never welcome. I sent an email to my ex-therapist that day, which I shouldn’t have done, though the interaction was benign. I just need to move on. She offered weekly phone calls, but I’ve heard the phone call plans before. I declined. I don’t want to set myself up for more missed calls, since she already put a caveat for why calls could be missed. So…. no thanks. More health issues for her per her, though a patient who let her know about this blog didn’t seem to know she’d been ill. She didn’t mention it when I sent her a message (she’d sent me a message one time many, many months ago that I’d sent a short reply in response). I hadn’t mentioned the blog. I guess some people get the well therapist, while I got the one with intermittent and chronic illnesses of all sorts that were the often reasons for many missed calls, over the nearly 4 years I’ve known her. I hope she’s OK, and wish her well. I’m just not needing someone who may or may not be there. I needed someone to help me get well and what I paid nearly $33K USD for, that was agreed on when i started. She said she wanted me as a friend. I wasn’t looking for that when I contacted her either. I’m not sure when that changed for her. She doesn’t call ‘friends’ when she says she will either, evidently. But we both left the door open, so if that ends up being the last contact, it was on decent terms.

    Food continues to be a problem. I’m aiming for bare minimums to keep my kidneys working, and hoping that some leg muscle goes away because of how bulky my thighs are. I’m already disgusted by what I see in the mirror; protein just taxes my kidneys and makes me look like an even bigger sow. But taking away the previous minimums has calmed my head down, which makes life less internally antagonistic. I’m focused on carbs and enough calories to keep doctors happy. I should still lose weight. Minimum carbs are 150 grams/day, and then I pad the other 400-500 calories with healthy fats and a little protein. Nothing is forced or mandated otherwise.

    I was notified that the male humanoid who raped/beat/sodomized me for 6 hours in 1987 was being considered for less supervision on parole. He hasn’t been out long this time, and had only been out on parole for 39 days when he attacked me. I told Texas that the next victim was on them. I’m done with spending time every 3 years (or less if he’s been out, screwed up, and went back to prison) telling them why someone who has offended ON parole every time he’s been ‘out’ since the 1970s shouldn’t be out.

    Today is fairly quiet, which is nice. I’ll likely watch something on Netflix or YouTube later (no TV accessible). Typical night. I don’t sleep well at night, so find ways to stay occupied. Moving some things around or collecting trash slowly is also on the agenda. I can’t get much done at one time, so it’s all in bits and pieces as I can tolerate it. At least at night, it’s cool enough to function more safely.

  • Why Am I Still Bloating After Eating?  ED or Colon Polyp Changes?

    Why Am I Still Bloating After Eating? ED or Colon Polyp Changes?

    Photo: mine

    My medical situation is complicated. I have various diseases and disorders which can make figuring out symptoms difficult. And I seem to have a list of diagnoses that makes me a favorite patient to send to various consultants, so nobody knows what the other guy/gal is doing. It gets very old. Some do a great job. Others tell me to tell my primary doc what’s going on. When I found out about the colon polyp (it’s large at 1.5cm), I wanted to talk to my ex-therapist about the ideas she’d mentioned briefly the day before, but when I messaged her to discuss some possible ways to make a very large prep easier (as she instructed), she had to “check her schedule” first. It felt like she told me to just go ahead and die (not her words, but that was the impact). She then told me of her various and incredulous medical issues, as if she were on death’s door- but was flying all over Europe or walking around London whenever she felt like it. Soon it was sick family, COVID & long COVID at the same time, etc. Felt like a huge slap in the face. She had time for other patients, but not to help me figure out a way to possibly eliminate something that could kill me if it evolves into cancer. Right now, it’s ‘just’ a large polyp with suspected other ones because of the size. GI wants it out, but not enough to work with me. Stepford patients.

    At any rate, I’m working on getting enough carbs and protein, as well as decent fats to avoid acute renal failure again (2x in 5 years is 2x too many), and the bloating that I expected to get better at some point (it’s been almost 4 years) is still acting up, though not consistently or with any rhyme or reason with types of foods. So, I tend to blame it on what I eat, but there are times when something feels different. I’m not willing to do another colonoscopy at this point since the GI docs won’t work with me on the volume/type of prep because of my kidney disease, even though my nephrologist signed off on a one time use of the products that worked nicely when i had a colonoscopy after I finished leukemia (APL) chemo, and was getting a new baseline work-up to know where I stood in terms of anything sketchy going on. It all went well. Colon was squeaky clean, and free of anything worrying. Great news !!

    I’m trying some anti-gas meds, but so far my old reliable Gas-X is not doing much. Next will be some hot tea to see if that eases the bloating (I’m in my 60s and look 6 months pregnant, with a shaved head that has about a dozen cysts/lipomas in various sizes- so i’m a weird sight to behold). The NG is also still hanging out of my nose- so I look like a candidate for a reboot of “One Flew Over the Cuckoo’s Nest”, and not as a nurse. I want this to settle down so I can move on with a plan to alternate what I eat to minimize protein issues, increase veggies and fruits, and work on eating what scares me in small amounts.

    I look like I need about 2 years at a fat farm, but the whole idea behind undoing eating disorder damage and head racket is to go through the hard part of eating in more normal ways and removing food ‘labels’ like ‘good’ and ‘bad’. I’m still terrified, and cannot ‘justify’ feeding what i see in the mirror. It’s horrifying- and yet logically I know that food is fuel, and even my inferior self needs it to live. I struggle with how worth it is it to keep doing what causes physical and emotional discomfort, but is also necessary. I WANT to be “normal”– and from what i understand, it’s about variety, socialization, enjoying the food, and not restricting (though I’m finding more ways to work medical food restrictions safely).

    Today was kind of a weird day, which always throws things off with food and fluid intake because of not wanting my plumbing (either way) to get triggered when I’m away from home (another side effect of pelvic floor muscle weakness from malnutrition). I also have a gut that has been put through hell for 50 years. I had an eye appointment (first in 9 1/2 years), and found out that I have a cataract in my right eye (not surgery time yet, especially with summer coming), and a much stronger prescription for glasses (expected that after so long), so $500 later (that was with the ‘no vision insurance’ package deal) I did get some answers about why I’ve had episodic headaches that are new, and why it’s so bloody hard to read without some kind of small microscope (labels in particular are written in microscopic print). Handheld magnifying glasses with lights are helpful, but I need something on my face to read books, articles, etc. I limit reading online for the same reason, though have the blue light filter thingie on my laptop.

    Anyway, I digress- the point was that changes in routine are tough to catch up on. It already takes a day before the appointment to get ready and shower, then the day of the appointment, it’s in and out of the car at least twice, and then a day or two to recover- so 3-4 days out of the week for a single appointment (I’ve had appointments 2 days in a row, and I’m feeling it in my SI joint- where the pelvis meets the sacrum). When I get home the day of the appointment, I have to catch up on whatever food and fluid I missed because of the ‘routine’ being messed up. I use ‘routine’ lightly, since I have an odd awake/sleep ‘schedule’ of maybe getting to sleep by 5 a.m. some days, and then sleeping until at least noon, but it could be crazier with not getting to bed until 8 a.m. and sleeping until 4-5 p.m. There’s no actual ‘routine’ other than I get up when I get up, and sleep when I sleep. I like sleeping during the day, especially in the warmer months when I can get more done later when the sun goes down- even inside it matters. This from someone who used to work 4 doubles a week at the coma stim job, and 8-16 hours for the others. I loved 12 hour weekends and Mondays, then off Tuesday-Friday.- lots of time for going out with my camera along the back roads of Texas. Or making the realistic dolls I paint, weight, and sell when my studio equipment is available. I miss those days, but if I ever get the energy to get my apartment sorted out, I can do the dolls again.

    But, I keep trying even though some days it feels like hell.

  • Growing Up With A Therapy Stigma… and Then I Was Shipped to The Psych Joint

    Growing Up With A Therapy Stigma… and Then I Was Shipped to The Psych Joint

    Photo- online general search.

    When I was shipped off to the nut house at 18, my mom was horrified. She thought for sure they’d turn me into some kind of cult member. I’m glad I was able to see the value in therapy when I left home- and had NO ‘judgey’ stuff yammered at me about needing help. They told nobody in the family where I was, except for one uncle who was sent on a recon mission to see if they had me chained to the wall in the dungeon. The rest of them thought I was either still in school, or ??? He brought my flute and a package of Oreos (he did not get the memo that I was there for anorexia and depression from malnutrition)… my folks were BANNED from contacting me or seeing me for over a month.

    Growing up, the idea of therapy had come up a couple of times. The first was when I was in Junior High school (grades 7 and 8) after I’d asked our pastor if people who committed suicide got into Heaven. He responsibly told my parents, who were livid. THEIR kid wasn’t going to be talking to people about things like that, and in no uncertain terms was their kid going to a therapist. I had my direct orders. I was miserable and later, as an adult, I realized that the emotional toll was related to a lot of trauma that went untreated for decades.

    In high school, I was on a ‘fast track’ to graduate a year early. I was already at least 6-12 months younger than my classmates because of my birthday being late in the year. In my junior year, I had 8 classes and no lunch period for the time it took to get through drivers’ education. That meant, after no breakfast, I had no fuel to function for 8 hours at school, and it didn’t take long before the fatigue and hunger were taking a toll. One of the teachers who monitored the hall I walked down daily noticed I wasn’t doing well. She asked me to answer some questions one day for what I now know was the Beck Depression Inventory, and I did not score well. She went to my guidance counselor (longtime family friend), who went to my dad (school principal) about having me cut out one class so I had a break during the day. That night, dad was fuming. He loved me, but didn’t understand why people can’t just buck up and move along. He reamed me for telling that teacher that I wasn’t doing well. Keep in mind that I spent most of my time after my folks got home in my room, so they had no clue how I was doing. I was told, verbatim, “If anyone asks you how you are, I don’t care if your arm is hanging on by a thread. You are FINE.” Then I got the “You don’t need therapy, do you?” in the same tone someone would ask if someone had herpes. Nope. Not me. I’m FINE. (later, as a detox RN, FINE meant ‘f-ed up, insecure, neurotic, and emotionally unwell, which was more accurate). About 9 1/2 years ago, I tracked down that teacher, and called to thank her for trying to get me help- and I was allowed to drop a class, so she did help, even if there was no therapy involved.

    Then, off to college a year later after graduating a semester early. I left high school on Friday, and the following Tuesday, I was in community college classes (two- just to keep me busy between work hours at a gift shop). I got through those classes (history- hated it, and philosophy, which was so boring), and then off to summer camp to work for the summer. That’s when the hardcore anorexia started, after years of moderate restriction- whether by my mom, or my own hopes of getting her approval by dieting on my own. I didn’t want to be huge for the University of Illinois. I wasn’t really huge- but I wasn’t what the weight charts of the times said I should weigh. By the time I got to the university, I was a mess. Before classes even started, I was ‘caught’ going to get some water from the hall water fountain, and had on my stadium coat and six pairs of socks because I was so cold. They could feel the cold through the socks. This was in late August in central Illinois where the humidity all but causes a greenhouse effect on a good day. My dorm mates got the resident advisor, who got the resident director of that dorm, and they called an ambulance to haul me off to the university health center. I had to stay overnight and talk to a psychiatrist in the morning before I could go back to the dorm.

    It took the psychiatrist about 10 minutes to diagnose me with anorexia nervosa based on the criteria at the time (Feighner criteria). I’d lost %25 of my body weight, and was still heavily restricting. I was at a normal weight, and wanted to lose another 40-50 pounds, which would have been severely underweight by any criteria. In order to stay at the university, I had to start therapy at the counseling center. I wasn’t opposed, but I had no way to express what was going on, and I’m not sure the therapist/she ever heard me say anything but “I don’t know” during that entire semester. But I showed up so I could stay in school, and not have to face the music of being some mental defect back home. The next semester, shortly after returning from the winter break of about a month, she finally heard something different… “I don’t want to wake up anymore.” And I had a very lethal plan set up that would have been easy to do in a room with no roommate. She called the university fire department to take me to the student health center where I was kept until family friends could pick me up and take me to a psych hospital near Chicago. I couldn’t face my parents because of the shame I was bringing to the family, and mostly their fear of how church friends would react, so they told no one. There was a blizzard that weekend in February, so I was in limbo until the roads were passable, which took about 3 days.

    I hadn’t planned on my folks being at the hospital to sign me in since I was on dad’s insurance. I was horrified. Fortunately, I was moved quickly to the locked adult unit (only adult unit aside from the substance abuse floor), and my folks were told they could have no contact with me for a month. No phone. No visits. My assigned psychiatrist knew something was wonky if I had been too afraid to have my folks pick me up at school. I felt so defective for being there, but also discovered that psych facilities are probably the most honest places on the planet. There are no useful defense mechanisms- they’d seen/heard them all. It was all about unloading the secrets and shame, and healing. Granted, back in the early 80s, things were still pretty basic, but cognitive therapy was being introduced via the new book (back then) “Feeling Good”, which simplified it for non-professionals. And if someone was acting up, where were they going to be sent? They were already in the funny farm.

    During that first admission (3 months), I wasn’t a model patient when it came to food and supplements. I was also a dissociative mess, and that part of my therapy wouldn’t be truly addressed for years, until I was no longer living with my folks in my hometown. I ended up in restraints in the “Quiet Room” (terrible name for that room depending on who was in there- I was quiet, and that was part of the problem). I wasn’t batshit nuts, but restraints were thought to be a way to keep people safe. They hadn’t planned on me being able to sort of fold my thumb in enough to get out of the wrist restraints, so when they looked in the little window in the door, it looked like I’d disappeared. I’d turn around with my legs crossed at the other end of the bed, and lean against the wall, arms free.
    They’d adjust the straps if I was still deemed unstable, or let out if I would commit not to do anything that made them feel I was still too goofy to be let loose in my room again.

    I got out after 3 months, and planned to work at the summer camp again for 1/2 of the summer once my boss from the nature center came to visit me in the nuthouse, and found that I wasn’t any different than my usual self, and I think he probably was glad I’d gotten help, after the camp was very concerned the previous summer when I dumped 40 pounds in 5 weeks. It was a good 1/2 summer season, though I was a cabin counselor, so had a much more hectic schedule. Then the plan was to go back to the university once my psychiatrist signed off, which he did without hesitation, making sure I had my prescription antidepressants and sleeping pills.

    I had to be dropped off at the dorm about 2 weeks early because my mom was undergoing radiation for post-mastectomy breast cancer. It was weird being in the dorm before everyone else got there (12 story building) with only a couple of people on each floor that usually held at least 100 girls. I made acquaintances with the bars on campus, even though I was under age by more than 2 years. I was getting drunk nearly every night. I know now that the pressure to “look normal” after being sent away the previous semester was too much. I was on a different floor, so not a lot of people knew about the psych hospital. Eventually, I broke.

    The other students were there, and classes had started. One evening, I had been to the bar, but wasn’t sloshed because I had homework. I remember taking the 10 sleeping pills one at a time, like a robot. I wasn’t thinking about dying, I just wanted to sleep (escape) from what was going on in my head. At some point, I also took 50 imipramine 50mg tablets (I don’t remember taking those), and went to sleep. Months later, I wrote to ask my roommate what had happened that next morning, because I didn’t remember anything until a nurse was going towards my crotch with a syringe to remove the catheter I didn’t know was there. My roommate said that she tried to wake me up that morning, but I mumbled something about needing sleep. When she got back from classes later that afternoon, I was still in the same position, not responding to anything, and she got help. Again with the ambulance, but this time I was transferred to the trauma center where my stomach was pumped and I was sent to ICU. My Glasgow Coma Scale score was 3. Next step down is dead. I didn’t wake up fully for 3 days. I have a couple of memory flashes of someone asking me if I overdosed while pulling the oxygen mask away from my face. I said ‘no’, which did nothing for my credibility. But I honestly never remembered wanting to die. I wanted to be at university- it wasn’t home, so that made it a better place to be with how messed up my head was.

    SO, back to the hospital near Chicago, which I was informed of when my parents SHOWED UP that Saturday. I was so angry. My therapist was called to the hospital to explain that I wasn’t safe enough for the university to want to be responsible for me. There wasn’t another chance. I went back to the psych hospital for another 4 months, with another 2 weeks in medical facilities altogether for 1982. My folks were still not OK with psychiatry, but also knew that I wasn’t OK to be at home at that point, especially with mom still doing radiation, so they took me straight back to the hospital with me seated between them in the front seat. They’d already packed up my dorm room before getting to the hospital.

    I was given every tricyclic antidepressant but one and one MAOI, along with anxiety meds, but they didn’t do much. I’ve never been ‘diagnosably’ depressed unless I was heavily restricting food. Meds weren’t going to help. I needed to eat. I was doing better, but still not well by a long shot. I left with supplements since lab work showed poor protein intake, which has been an ongoing battle, unless I allowed myself to get BBQ when I lived in Texas.

    After being discharged in early January 1983, I was still going to downtown Chicago for twice weekly appointments with my psychiatrist for a couple of months, then down to weekly. Eventually, he had a second office in a closer suburb (that avoided all Chicago traffic). He didn’t want me to go home at all, but to a halfway house in Chicago in a sketchy area of town, and I refused. He figured out parts of an ongoing puzzle that wasn’t made clear for another 7 years, but he got me through nursing school, which was stressful. I’m not proud of having been in a psych hospital, but those admissions did keep me alive, and removed me from my home, which allowed me to speak for the first time in my life. I didn’t have to pretend I was OK- being a patient already cleared up that I wasn’t OK. They were good to me there, even when I was a jerk with the food situation. I was the youngest on the adult floor the entire time I was there. That facility has since been shut down, but while I was there, I was treated fairly, and became fond of several of the staff members.

    There’s no shame in getting help… just in not trying. And for those who also deal with any kind of religious bias against therapy, it’s not a boogie man situation. There are all kinds of therapists and levels of care. Your faith can’t be taken from you- only relinquished. If you need help, I think God would rather have any of us do that than show up to His place early.
    <3

  • Eating Disorders & Age

    Eating Disorders & Age

    Photo- mine

    When I first was diagnosed with anorexia in 1981, it was thought that eating disorders were something that only impacted teens and those in their early 20s. That is absolutely NOT accurate. More and more women AND men, from all backgrounds, socioeconomic levels, and ages are being diagnosed with eating disorders. Some were never diagnosed accurately earlier in their lives, but many are being diagnosed for the first time in middle age, or older. Only %6 of those with eating disorders are medically underweight (according to the highly flawed BMI chart; someone can be within the “normal’ weight range, and be underweight for their body type). Every 52 minutes someone dies as a result of an eating disorder. More than 27 people per day are lost to eating disorders. Someone’s mother, father, sister, brother, daughter, son, cousin, aunt, uncle, grandparent…. gone.

    General statistics on eating disorders-
    https://www.nationaleatingdisorders.org/statistics/#general-eating-disorder-statistics

    Eating disorders in older adults-
    https://www.cambridge.org/core/journals/bjpsych-advances/article/disordered-eating-in-older-people-some-causes-and-treatments/0F154FFC05FD133ACAC04A19ECF3258F

    There is a huge disparity between age groups as far as correct diagnosis and treatment, with those who aren’t underweight being essentially ignored. I’ve had chronic medical complications from over 5 decades of disordered eating and restriction, with many of the symptoms of starvation (low blood pressure and heart rate for long enough that my kidneys are damaged, dehydration, feeling cold, delayed gastric emptying, etc), and not one doctor ever questioned my eating habits at the time, even though I’ve got anorexia in my medical history. My nephrologist was the one who identified that my chronic kidney disease was NOT from diabetes as was assumed, but from hypo-perfusion of my kidneys. He also looked at lab work that is routinely done for kidney patients, and with certain things being low, he told me that the only reason those labs were at those levels is from not eating enough. He gave me 2 weeks to eat more, get more fluids in, and a lab recheck or he was going to hospitalize me for medical issues related to restricted eating. I have been in acute renal failure twice in 4 1/2 years from restriction. I’m in my early 60s.

    I worked at a nursing home in the 90s, and there was a lady there that starved her way down to 50 pounds, in spite of a lengthy list of interventions. She was in the facility along with her husband, and they shared a ‘room plus’ (a sitting area outside of the bedroom area) on the wing with the most independent residents. She was eventually transferred to a psych hospital (only place that would take an elderly patient) in a larger city about 60 miles away, after hours of talking to EMS transport (only medical transport we had in that town then), her psychiatrist (nice guy), and the family. Because of her age, she was given some wonky diagnosis that really didn’t fit. She came back about 25 pounds heavier (she was petite to start with), and lost some weight again, though not as severely as before. She eventually died. I don’t remember the official cause of death, but I’ve always thought that she was blown off in regard to anorexia nervosa because of her age.

    I’ve seen several interviews of anorexic middle aged, or older, women. Some didn’t have any eating disorder history until a spouse/partner died, children moved away, a family tragedy, severe illnesses, or other traumatic events. Others had been anorexic in earlier life, but had decades of time when their eating was stable, and they weren’t losing weight. And a few had developed anorexia in their teens, and had never had a period of stable eating and appropriate weights. You can search YouTube for ‘eating disorders in older adults’ or ‘ middle-aged eating disorders’ for videos on this.

    The genetic component is also interesting to me. I’ve got a paternal aunt who has been anorexic since her teens. She must be in her late 70s now. I’ve never met her (I was adopted but found my biological family), but have seen many photos from across her lifespan, and her diagnosis of ‘late onset schizophrenia’ doesn’t match with the degree of interaction or engaged affect in photos (I worked with many schizophrenic patients when I was a RN). But she is very petite, and a close family member of hers said she’d been anorexic for as long as she’d known her. She wasn’t ‘scary thin’, so again, my gut reaction is that her eating disorder damaged her brain because of nutritional deficiencies that have been in place since her teens, as well as how long she’d been engaging in restrictive eating in general. She could easily pass as someone who is just ‘smaller framed’- and with her age, nobody questioned her nutritional state in regards to her symptoms. Who knows what kind of psychiatric meds she’s been put on, when it’s possible she might need nutritional support.

    It’s pretty common in older age to have some type of nutritional deficiencies as appetites change with age, along with grief and depression that occur following the loss of family and friends. There are many vitamin and mineral deficiencies that can cause or mimic mental illnesses. It’s important not to start supplements without talking to your primary care provider. But it’s also something to be aware that nutrition impacts mental health. The best ‘fix’ for nutritional deficiencies is better nutrition!
    Nutritional deficiencies and mental health-
    https://doctor.ndtv.com/nutrition/9-mental-health-issues-nutrient-deficiencies-it-could-indicate-8812494

    Vitamin B 12 deficiency can cause psychotic and dementia like symptoms. It can be reversed if treated in time. If not, it can be permanent. Vitamin B 12 deficiency can also be a big issue in vegetarian and vegan diets in all ages (which can be used by those with eating disorders in order to avoid higher calorie protein sources). As someone who was a RN for 35 years, I do not advise getting B 12 shots at shops in malls, that give them without medical assessment or lab work. The strength of the injections may not be what is appropriate for everyone. Talk to your doctor if you suspect any nutritional deficiencies, and get the appropriate lab work. There are places that will do lab work without a MD order if your doctor dismisses your concerns; you can search for these online in your area.

    Find a lab-
    https://www.ultalabtests.com/?msclkid=49a2b9308ef414bdf2e5d022da946273&utm_source=bing&utm_medium=cpc&utm_campaign=Generic%7CNonbrand%7CBroad&utm_term=medical%20laboratory%20tests&utm_content=Ad%20group%201


    Vitamin B 12 and mental health-
    https://www.newstarget.com/2025-09-16-vitamin-b12-deficiency-overlooked-cause-psychiatric-symptoms.html







  • I Saw My Dietician Today-
My Head Is Changing!
*insert happy dance*

    I Saw My Dietician Today- My Head Is Changing! *insert happy dance*

    Photo- mine (and blurry)

    My dietician asked me something today, and I hadn’t even realized that I’ve been doing it for about 6-8 months. She asked if I still freaked out about having to eat X, Y, or Z, but knew that I needed to do it because it was the healthy thing to do. Yup. I do !! I AM thinking differently. I think the YouTube videos are sinking in, at least “enough” to make a difference. I knew I’d been able to put enough in a bowl to get food in- but not paid attention to my thinking around it. It has been just a chore to get done. But there is the focus on not letting carbs drop too much to strain kidneys.

    Since Ex-T has been MIA for nearly all of the last 5 months (and sketchy consistency before then x 2+ years), I know it has nothing to do with her. I still have trouble ‘feeding’ that thing I see in the mirror, but I know that to keep my kidneys from going into acute failure again, I have to get minimums in of protein, carbs, and fat. That’s the ‘loophole’ in my head – keeping my kidneys going. And Ex-T’s absence and lack of phone calls actually made has forced me to figure it out on my own when I’m in the moment. She tended to want people to come to her and ask for more contact, and I’m not into that- either do what is discussed, or quit saying that any phone call is coming. SO, her absence has made me stronger.

    I’m still stuck when it comes to eating something because it sounds good, but I can consistently get the macros in, even if the assortment is a bit odd (breakfast tomorrow- cheese, crackers, strawberries). While I still fear gaining weight, and don’t enjoy eating or food prep, I’m still getting it done. And my weight has been stable since regaining what I’d lost, and is going down slowly again. I am wanting to lose quite a bit of weight, but I don’t want to go backwards. This has been hell to get to this point, and I’m nowhere near comfortable with food sitting in me.

    Body composition has also changed for the better. I used to have visible tendons behind my knees from muscle atrophy- which is why I have a wheelchair for larger areas. The tendons aren’t visible (not thrilled with that if I’m honest, but at the same time, I know that muscle atrophy isn’t good). My right bicep and both calf muscles were essentially gone. They’re back, though I still have too much fat. I have little bits of hair on my arms for the first time since it all fell out during chemo in 2010. Protein has been an issue for decades d/t prep and cooking time, and the changes in how much muscle has grown back is noticeable. I’ve never eaten this much protein for this long in my life (60 grams/day per kidney disease limits).

    It took me until tonight to realize what that question (and answer) meant in the overall picture of recovering. I’ve got a toehold now ! I don’t cry when I open the fridge door and have to choose something. There are days when I really don’t want food, but I make something happen, even if it’s just snacky stuff or a protein bar. My dietician talked about peanut butter and jelly sandwiches (not allowed when I was a kid) because of limited protein options, quick/easy prep, and the healthy fats in peanut butter. Even 4-5 months ago, I would have freaked, but I think it’s OK to try. I know I like them, and especially with Aldi, they are very affordable which is huge now. It’s all about how i portion it.

    I’m pretty pleased with this and at the same time, it’s scary. Getting ‘too’ comfortable with food is still a threat in my head. I still manipulate the numbers so I don’t go over my ‘quotas’. If I eat something unplanned, I redo the rest of the day’s food plan. BUT, at least there is a shift towards the good, and getting well. That is the most encouraging thing that’s gone on in 3 1/2 years. .

  • It Started Out Pretty Well Before the Breadcrumbing

    It Started Out Pretty Well Before the Breadcrumbing

    Photo- mine, turkey tail mushrooms

    I have to be fair about how ‘therapy’ was – not just the bad ending. It started out well. I wasn’t in good shape, after not eating solid food for about a week, and in the middle of ’round 2′ in 2 years of losing weight rapidly. The first part of the relapse started in May 2021. When my labs came back, my kidneys were in lousy shape – as in getting used to the idea of a transplant list. I was in acute renal failure from cutting carbs too much, breaking down muscle that my kidneys had to deal with circling around in my bloodstream. I got out of that by increasing carbs, but still restricted. Then I restricted more, but kept ‘enough’ carbs on board not to make my kidneys worse. I’ve had chromic kidney disease for about 8 years, from inadequate blood pressure and heart rate along with dehydration after decades of restricted eating.

    I’ve been through enough relapses (vs. my ‘normal’ restricting that I thought was fairly normal) to know when I’m getting into trouble, and it didn’t take long when I started losing again. Over the past 4 1/2 years, I’ve lost/gained/lost/gained a total 220 pounds (45 down/up, then 65 down/up). That’s hard on a body. When I was having more and more difficulty with just getting in my 500-600 calories/day and unable to ‘snap out of it’ (labs were stable) I decided to contact the eating disorder therapist I’d seen on Facebook, after first hearing about her on 20/20 in the late 90s. After I’d found her on FB, I told myself that if she was still treating people, AND had an opening, I’d take that as a sign that it was meant to be. I also thought there was no way all three of those would happen, but they did.

    By the time I had my first phone session with Ex-T, I was barely even drinking enough water. I was getting just enough in, but that was about it after I’d cut the tube feeding formula out 5 days earlier. Ex-T was at an airport flying home, and she talked me through an 8 oz bottle of kefir. I’m not sure how long it took, but it was hard. My head was so against anything with calories, and it was a fight to get every sip down. She had a connecting flight, and called me from the next airport, and again when she got home, like she said she would. To distract me, she sent a video of some deer she’d seen near where she’d been staying. She was very kind and patient, just as I’d seen on the TV show.

    For the next several weeks, she called a few times a day to check in and tell me what to eat. That was very helpful, because it took the ‘blame’ of eating away from me, so my head wouldn’t go after me as much. It was also difficult, because I wasn’t used to some of the foods she wanted me to eat (though she never told me I had to eat anything that I really didn’t like) and the amounts were not what I was used to. She didn’t asked me to eat a lot at one time, except for once (2 whole bagels and cream cheese). I just wasn’t used to eating what normal people did, because I never knew what that was like. From that, we both realized that I had no clue about what normal eating was- I don’t remember it. So, she was trying to undo 5 decades of food restriction, whether imposed or when I went off the rails during the summer of 1981 and haven’t been the same since.

    Refeeding syndrome was a risk, and both Ex-T and my dietician said the same thing. Ex-T was in charge of food, but I had to see someone local, in person, in order for Ex-T to accept me as a patient, which was prudent. I’d seen the dietician a year or two before then, so had a bit of history with her, and knew I could work with here on this end of things. I hadn’t heard of refeeding syndrome, but looked up some stuff on it, though retaining information was a problem, and still isn’t back to my ‘normal’ of reading 3-4 novels a week. Ex-T gave me firm instructions that I was not to eat anything she didn’t tell me to eat, and if I wanted something else, I needed to check with her, and this was to keep me safe at that point. It wasn’t about controlling my food (or me) as much as it was to keep me from getting into potentially fatal complications.

    I ended up with a concussion about a week or so after moving from my childhood home to an apartment, and that was problematic because of vertigo, nausea, memory issues, and constant ringing in my ears (still have constant ‘cicadas’ chirping nonstop 3 1/2 years later). That move was about a week or so after the first phone calls. Then, there were a bunch of infections and a sepsis scare, and she was very attentive with calls and messages. My blood pressure and heart rate were still erratic, and I was on activity restriction limited to being up for 10 minutes three times a day except for getting food or showering. My dietician said the same thing, without talking to Ex-T, so that helped that they were on the same page. I passed out a lot, and also have seizures (diagnosed when I was 22), which were more unstable. I was a mess. Being conscious was never guaranteed.

    For about 5 months, if Ex-T said she was going to call, she generally did. I knew that the contact would decrease as I got more stable, and was fully on board with that. There were some humorous conversations and messages, and the relaxed ‘tone’ to the ‘therapy’ was pleasant. I had ‘homework’ assignments, to give background info on family, food history, trauma history, medical issues, etc. Those first 5-5 1/2 months were fine. I didn’t have any ‘red flags’ going off about anything. I had hope that I was going to get better.

    Then, Ex-T asked me if I could pay double for more intensive contact for 6 months. I agreed, hoping that it would cut time off of the back end of the estimated 2-2 1/2 years the five stages would take to work through. Within a couple of weeks, the first signs of trouble started. Ex-T had gone back to Europe for the winter, and was working ‘in person’ with several patients who were further along in their therapy with her. I heard nothing from her for a couple of weeks (and was in chaos with what to eat). I finally contacted another patient who I’d been in phone contact with for a few months, and she told me that things had been very hectic, and a guy from Oceania had just shown up at the airport. When I did talk to Ex-T, she told me he was only 29kg (about 64 pounds), and she couldn’t turn him away. Turns out, he weighed more than that when he got there… 29kg was his lowest ever weight.

    I have a hard time believing that someone just showed up at the airport to start ‘live-in’ treatment from another hemisphere without there being some planning involved. I believe she knew about this when she asked me to pay double. My heart sank, and the first very serious doubts kicked in. I understood not wanting to turn away someone that ill- I had no problem with that. But I did have trouble paying for more intensive time that was sporadic at best, and didn’t start for several weeks. I asked Ex-T if we should postpone my more intensive ‘therapy’ until the guy was more stable. She said no; she could do both. But it didn’t turn out that way. I never really got past that point in the ‘five stages’ in her program (stage 2), but I was so ashamed to send photos of what I’d eaten (how she checked what and how much I was having), or have someone on the phone talking me through food when she had the 64 pound guy there. It messed with my head a lot.

    I was stalled with food for months after that, and then ended up with issues related to gout medication, so I had to change the types of protein I had. That was just one more thing that focused on food and medical stuff. All of that makes eating disorder recovery so much worse. In the past, I didn’t have to weigh out protein or limit (severely at times) how much protein food I ate. Even being diabetic wasn’t that big of an issue since I was diet controlled for 12 years. I’ve been on insulin for 18 years now. So, I wasn’t supposed to focus on numbers, but had to for insulin dosing, kidney disease, and gout flare prevention. Ex-T was agreeable to me managing the amounts of protein since I was here alone, and knew what I needed to do. She would still give input about other foods, at least for a while.

    At any rate, the first 5-6 months were difficult only in that eating was so miserable, but not because of Ex-T. I was sick a lot. I passed out fairly often (have had a ‘safety routine’ when I first get out of bed, to avoid hitting the floor). My head was constantly upset about how much I was eating, even though I knew that for a ‘normal’ person, the portions were more snack-sized (though had 5-6 of them a day). I knew she wasn’t asking me to eat too much. My stomach was a mess with bloating, so that didn’t help. I was (and still am) using an NG tube to be sure I got enough fluids in. That started just to get me through a bladder infection, but it’s still in 3 1/2 years later (I change the tube every 4-6 weeks, and was trained as a RN on how to do that; do NOT attempt that if you don’t know what you’re doing- you could literally drown from it). I am doing better drinking fluids normally, but on ‘bad bloat’ days, it’s still hard. I want to remember more of the OK time. The lousy ending is still very raw, so I’m struggling. But it wasn’t horrible at the beginning. And there were some OK months with fairly regular contact after the guy was more stable, when I was supposed to be doing more intensive stuff. There were many calls that didn’t happen, and that got much worse a couple of years ago and continued getting more sporadic to the tune of not getting a call for a month (more than once or twice), but I didn’t know I was being breadcrumbed at the time.

    It saddens me a lot that someone whose views I once respected so much became such a source of pain and stress. Trust is gone, and has been shaky for a while. This was a last shot. If I can’t get it together with my dietician and the YouTube recovery videos, I will never be free of the food wars in my head. I can deal with getting enough macros in each day, because my head ‘allows’ for keeping my kidneys from a third run-in with acute kidney failure- that’s been a loophole for several years.

    I saw my dietitian today for the first time in 6 months (long summer of biopsies and tests), and she thinks I seem stronger mentally after ending contact/therapy with Ex-T, after I said I felt stronger. She is also checking into the YouTube content creators who share information based on their experiences with being recovered, and believe in a ‘no diet’ mentality. Single serving size packages of foods (frozen dinners, hummus, guacamole, fruit, etc) are also helpful for not being as scary. I’m no longer having to follow more food restricted by Ex-T, so my veggie intake has gone up (especially eggplant parmesan entrees, and bell peppers for a chickpea/feta/veggie/olive salad). So I am moving forward.

    I don’t have the hope I once did, but I’m not giving up.

  • Choosing An Online Eating Disorder Therapist

    Choosing An Online Eating Disorder Therapist

    Photo- mine.

    OK, first of all, if you can get professional “in person” help, please do. Things have come a long way in the 44 years I’ve been getting help on and off- from straight up psych hospitals, to inpatient treatment (medical and residential), and outpatient. Back then, if you ate, you were better (and cut loose). No matter what kind of treatment you get, be sure to get a doctor on board, and especially a dietician. If you go through a program, those folks and therapists are part of the program.

    There’s a much better understanding about the impact of restricting food and compensating (exercise, purging, skipping food, etc), and more intuitive ways to manage food, though I do think a food plan is helpful at first and can help ease the guilt of eating if someone else just puts it in front of you. I never had that kind of experience outpatient, and with inpatient, stuff just showed up whether or not I wanted it, which was appropriate for that level of care. MANY of the symptoms of anorexia, or any ongoing restriction, are the direct result of starvation and malnutrition. Many family members are recruited to supervise meals in the beginning. That’s a good thing, though terrifying. It will help things move along better in the early months. With improved nutrition, the eating disorder thought patterns and obsession reduced, though I know of one man whose entire family went into the food service business after surviving a concentration camp. https://psychiatry.duke.edu/blog/starvation-experiment

    Refeeding syndrome is serious, and needs medical supervision to monitor specific chemicals/electrolytes via blood tests. Refeeding done wrong can be fatal, so get some help with that. It happens in any size body- I’m in a larger body, and my dietitian and ex-therapist both told me the same thing… no exercise, only up 10 minutes 3 x a day (laundry, trash, mail) unless getting food or using the bathroom. I’m still not allowed to exercise, over 3 years in. Mostly, I slept between things I had to eat, because my body was absolutely exhausted. If your prospective (or chosen) therapist doesn’t understand refeeding syndrome, find one who does if possible.

    Look for the therapists’ online reviews. Google them. Check out their social media… in other words, vet the hell out of them. If there is anything questionable move on. Don’t get lulled into some disaster because you’re desperate. Try to get with someone in a group of therapists (online mental health sites that match therapists could be of use). If you find someone and things don’t work out, CHANGE therapists. They work for you- you are employing them. And that means you can fire them. I don’t mean for asking you to eat 2 grams of butter or an extra ounce of banana. I mean violating safety and ethical issues, and/or abusive or manipulative behavior. When I was first on disability, I must have ‘test-driven’ (meet-and-greet type appointment in person) about 4-5 therapists before finding one that was compatible.

    Ask about how long they’ve been treating eating disorders, and what their philosophy is about eating disorder treatment. Do they support “all in”, or are they regimented ? Do they understand that size doesn’t matter, and someone who is overweight can have just as serious health complications as someone who is underweight? Even someone who is obese can have bradycardia, hypotension (low blood pressure), feel cold, have lanugo, be unable to sleep, pass out, etc. You are “sick enough” if you life is deteriorating because of your eating disorder. If al you think about is food and how to avoid weight gain, you have a problem. Especially for adults, primary care docs don’t get any education about adults with eating disorders. I’ve gone years with overt symptoms but because I’m ‘fluffy’, I was told to lose weight. NO problem ! Until it caused acute renal failure twice in the last 4 years.

    If you have a therapist that micromanages every food imaginable, without the person having any risk factors for eating that food, find someone else. You should never feel guilt for eating what will get you well, and that will be different for everyone. Yeah, in the beginning, you’ll probably have to put up with some routines that can be very scary initially- but that’s to help get you out of acute starvation so your body can begin to heal from the damage caused by restriction.
    The fear around this WILL decrease.

    I was horrified when my ex-therapist asked me to eat 3 ounce of cheese ! WHAT? That was 3 servings in my mind- and cheese… that wasn’t safe at all to my head. But how can one designated serving size be what is right for every body out there? A child needs less, an adolescent needs a more, an larger frame adult needs more than a smaller frame (unless in weight restoration), active folks need more than couch potatoes, and someone who is overweight by xx pounds will be unable to lose weight unless they eat enough… that’s right. of us who have been chronic dieters and anorexic/atypical anorexic, and gained weight because of jacking our metabolism all to hell, need to eat more in a LOT of individual cases before our bodies feel ‘safe’ that food isn’t going to be scarce again. The body is designed for survival and keeping things as balanced as possible.

    Does the therapist have set hours? What about what to do in an emergency situation if the therapist isn’t available ? Does this therapist travel a lot? Do they have other projects besides being a therapist? (I’d stay clear of them). Can you pay per session? Is payment funneled through an online wire transfer service? OR can you pay with a credit card (some recourse if things don’t work out)? Will your agreed upon appointments be set for a specific day and time, or is it more casual or unpredictable? You have to decide what you think is important. In the early months, consistency will be very important.

    If you find information that isn’t positive about a prospective therapist, find another. There will always be critics, but if the majority of reviews are not good or there’ve been legal issues, that is a good indicator that you need someone else.

  • What To Look For In Therapy Going Wrong

    What To Look For In Therapy Going Wrong

    I first had inklings of something not being OK nearly 3 years ago. Something wasn’t right, but I was the one who was seeking help for a messed up head, so what did I know? There was one other time when I didn’t listen to my gut, and it nearly got me murdered (and did get me raped, beaten and sodomized for 6 hours before I was able to escape prior to being dismembered alive), so being someone who thinks others are more valid, correct, ‘better’, etc. has cost me a LOT. But when I’m done being a patient patient, I’m DONE.

    I was in tears every month when I sent another month’s payment in, not realizing it was the solidification of how well ‘breadcrumbing’ was working on me. There was just enough contact to make me think things were OK ‘enough’, but not to erase my concerns completely. I did start to be more guarded, but that still wasn’t enough. I wanted SO badly to be a success story, and help others as many of her previous patients had done. But I also knew that the calls she never followed through with making, time she was unavailable (grew over time), other projects that took up her time, etc were making me feel more worthless- not the opposite, which was the supposed goal after seeing the TV show decades ago, and reading her book. It all seemed very precarious and confusing.

    There is a ‘normal’ dependency during deep trauma work (never got past the listing off of events, or some one-off discussions… there was no “work” on the issues). With eating disorder therapy, nowadays, it’s quite common for someone else to make decisions about what someone eats because there really is an inability to act on the logical ‘need’ to eat. But when is it more like ‘grooming’ ? When is the goal KEEPING someone dependent for the therapists’ own reasons? These are what I now feel were ‘breadcrumbs’ or other ways to manipulate me into being dependent. This should never be the goal of therapy, even when trauma and developmental stalls are involved.

    – telling someone they want to know them for the rest of their (therapists) life…. the goal of therapy is to heal and move on. If a friendship develops AFTER therapy, that’s up to the parties involved. When the “I’m not going to lose you” starts, it’s a worrying sign. I’m guessing she’d say it was about me not dying from the eating disorder- but then why not make those phone calls as planned? Because it keeps the patient hoping for contact. Eventually, the realization is that no call is likely to come, and the abandonment and attachment issues just deepen. For those who keep listening to the BS, it keeps them where the therapist wants them…wanting more contact.

    – wanting control over food… again. Nearly 3 years after that was appropriate. But when the therapist can be MIA for a month at a time between phone calls, how would having control over food look? There’s a saying “Whoever controls the food controls the people.” (from Henry Kissinger- yeah, not a great source, but he wasn’t wrong with this- then or now, even from beyond the grave). It was about political people, but it also fits here. When someone is in control over something as basic as food, that’s not a good place to be unless that person is known to the person being helped, and there’s enough “safe history” to be OK- as in eating disorder patients going through various programs where parents make and supervise food and eating. My ex-therapist and I never met- and never even had a video call. We never saw each other face to face.

    – history of questionable safety or ethical issues. I won’t go into detail, but the internet is full of negative information about this therapist. I simply didn’t want to believe it, and it has cost me a lot- financially and emotionally. There was a book written by someone who just seemed bitter at the time I heard about it (never read it). I did read several articles when I was trying to locate this therapist, but I couldn’t reconcile the person I’d seen in the TV episode on a news program and talk show 20+ years ago with what I was reading online. Do some serious digging when it comes to getting help online for any health issue.

    – not ‘letting’ me quit earlier. She dIdn’t want to ‘lose’ me, I wasn’t in a place to make a sound decision (per her), didn’t get through the stages (barely kept a toehold in stage 2 of 5, when per initial estimates would have taken about 2 years for the entire process).

    – ALWAYS has excuses/reasons for not having contact as planned… sick (she was sick for months in total over the past 3+ years), other projects, new patients, emergencies, jet lag, traveling/flights, patient returning after causing chaos with multiple patients- leaving the patients who were impacted in the dust while the therapist couldn’t ‘ethically’ not deal with the troublemaker (but for those who didn’t cause trouble, no problem with them hanging out in the cold), family sick, family traveling and had to get them from the airport, moving, moving again, moving between countries every few months, etc. ALL of this can be valid, but when it’s a pattern of never-ending reasons for not having contact, it’s a problem. NO THERAPIST should breadcrumb a patient. Period. Full stop. OR, if their life is that chaotic, it’s their ethical responsibility to set limits on new patients, or keeping ones they already have. An honest conversation is always a better option than meeting their own need to be essentially the ‘dear leader’ of their own cult.

    – asking for money besides what was agreed upon for therapy itself. It’s NEVER OK for a therapist to ask for money outside of this. Ever. This is also a test of how well the breadcrumbing has gone. Unfortunately, it took me another year, and more issues, to wake up that I’d been hung out to dry for a couple of years by then. When I finally said no, twice, to money requests, contact dropped even more. I’d paid what had been agreed to to the tune of $32K USD- which was huge for me. I’m in financial desert land now.

    – talks about specifics of other patients’ issues, weight, family business, etc. NOT OK. She’d asked me if she could tell another patient about me, who would be having contact with me (further along in the process, and a peer support contact). That was fine. But to tell me deeply personal and disturbing information about another patient and his/her family was more than not OK. In the US, it’d get someone disciplined by their licensing board, and possibly federal charges under HIPAA. But this therapist isn’t in the US.

    – when the request for money is ‘no’, and a list of financial issues on the patient’s end is responded to only with asking if I had the banking info to make a transfer, that’s a huge going-down-in-flames red flag. The patient becomes what the therapist needs… so effectively ending the therapy.

    – says things very specifically, in a way that may sound like a commitment, but is meaningless in the end. “I want to talk to you” doesn’t mean “I will talk to you”… and eventually, “I will talk to you at X time.” becomes meaningless, and retraumatises the ‘target’. With the therapist knowing full well about the abandonment and attachment trauma.

    _ has written in a book that telling a patient something positive doesn’t have to be true… just don’t be negative. Isn’t that just a fancy description for deceit and BS ? I’ve heard how my sense of humor is “to die for” (yeah, well in the end, it may be… ), or “you’re so much funnier than people in comedy videos”. Uh huh. I wasn’t laughing then, and definitely am not laughing now. “I wish I’d been your mother” “You’re like a daughter to me.” (gads, I hope not, for her daughters’ sakes). I have trouble believing anything she’s said to me at this point.

    – doesn’t respond directly to emails (or whatever communication) about issues WITH therapy (the calls that didn’t come more often than they did, requests to not planning calls ahead of time, falling asleep during calls- multiple times, etc.). It leaves the patient feeling not worth listening to or the time to work things out… and in this case, ‘working it out’ would have meant that the therapist would actually have to give a rip about what they were doing to the patient with the inconsistencies and ongoing breadcrumbing. No patient should have to keep track of “said she’d call” and “actual calls” for nearly 2 years.

    She travels throughout Europe seeing patients who pay ‘enough’. She has some live with her family. Her plans’ deadlines are always extended, whether publishing books, phone calls, or other endeavors. She makes promises she doesn’t keep. She keeps those around whose stories might boost herself. She often uses “I’m saving your life” or other dramatic terms. She talks about patients with patients… sometimes with their permission. Or not. She had more restrictive food ‘rules’ based on nothing more than random internet searches- not peer-reviewed science based studies (first thing my dietitian did when I told her I was no longer with ‘M’ was to lift all food rules not specific to physical diagnoses I have- and said that if something sounded good, but might be a bit on the ‘fun’ side, go for it… and supplement by tube as needed. That’s where I’m at. Still using an NG after 3 years because I can’t get my volume tolerance up).

    These are just a few personal examples. Yeah, I know it makes me sound so stupid and gullible- and I can understand the gullible part. And that’s what desperation for help can do. It blinds someone’s ability to realize that they aren’t perceiving things incorrectly… they’re being manipulated. The desire to get well blurs what is so clear, but only realized when something happens to blast open the blinders, and see what has been going on. There are others who experience this, and/or are at higher risk – domestic violence victims, cult members, and the thoroughly disenfranchised. And this therapist knew that local family was gone, I am basically housebound from disability, and was selling my childhood home (not for much, unfortunately). I couldn’t have had a bigger bullseye on my head.

    In the US, report any such therapists to their licensing board- to prevent others from going through what you did. And if seeking online help, be sure to know the way to deal with unethical behavior from a therapist or other healthcare provider. Keep records. Take screenshots of any messages. Save emails. Keep financial records. Protect yourself. It’s much better never to need any of it, than to need it and not have it.